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Please Sign Petition: Thank You to Our ME Experts
Link to Petition: http://www.thepetitionsite.com/898/238/310/thank-you-to-mecfs-experts/ Our experts have taken a brave and trailblazing stand for ME patients by agreeing, in an open letter to...
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Principled Approach: Fighting the IOM Contract is a Moral Imperative
“If patient advocates sit on the committee, they will be played. The government will then be able to say the patient sector was represented in the committee’s actions and the outcome of the work.”—John...
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Overwhelming, Growing Support of ME Experts by Advocates in Opposition to IOM...
As was the case with the experts’ open letter to Secretary Sebelius—which was first published on September 23, 2013 and then updated on October 25, 2013—the October 28, 2013 advocates’ letter now has...
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Call for Investigation by the Inspector General of the IOM’s Conflict of...
To use a poker analogy, I see your argument, PANDORA and a few others, that all ME/CFS experts who signed the open experts’ letter of October 25, 2013 are biased—merely due to signing that letter—and...
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Inquiring Minds Want to Know: Who is Behind the IOM FAQs?
Today, somewhat mysterious—and maybe (based on the quality and the formatting) hastily drafted—FAQs regarding the IOM contract (“FAQs”) appeared on the Internet. I say mysterious because the authorship...
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Supplemental Request for Investigation by OIG: Did DHHS Violate its...
Today, I supplemented my request for investigation by the DHHS’s Office of Inspector General (OIG). My previous claim from earlier this week is that the IOM has a conflict of interest that disqualifies...
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Call for the HHS Competition Advocate to Investigate the IOM Contract
I have sent today to the so-called “Competition Advocate” for HHS a request to investigate what appears to be a dramatic failure of HHS to follow applicable federal law and regulations regarding full...
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Sebelius “Responds” to the Experts: “You Mean This Is Not What You Wanted?”
On November 12, 2013—as I found out just yesterday—more than seven weeks after the original open expert letter was sent to her, Secretary Sebelius finally provided a brief “response” mirroring the...
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CFIDS Association Asking Signatories to Withdraw Endorsement of CCC
I know this for a fact, but can’t disclose my source: The CFIDS Association of America (“CAA”) has contacted at least some, maybe all, of the 35 signatories of the letter addressed to the HHS regarding...
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Spinning Around-CAA Putting Political Spin on the IOM
“A “spin room” …. is an area in which reporters can speak with debate participants and/or their representatives after a debate. The name refers to the fact that the participants will attempt to “spin”...
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